Thursday, February 24, 2011

Worry Not...


28 “And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin. 29 Yet I tell you that not even Solomon in all his splendor was dressed like one of these.
-Matthew 7:28-29

Sunday, February 20, 2011

"What is man that you are mindful of him, and the son of man

that You visit him?"
-Psalm 8:4



Thursday, February 10, 2011

From the director of Open Bible Christian School to Mikayla

"To our brave cutie pie. You hang in there and remember we love you and are praying for you in class. Keep us up on to date ok.
Love your whole family Gail Miss Debbi and all"

Wednesday, February 9, 2011

MRI

MRI done January 20th 2011






CT


CT Scan done January 18th 2011






Joy


We needed a break from it all so we followed the sunshine to the beach!

What a blessing it was to watch Mikayla rushing into the water with no fear...she giggled and laughed and splashed until her heart was content (when she fell into the cold water.) She knows she has a mass in her head that shouldn't be there....she knows something is wrong....she knows she will have an terrible pain in her head at any moment....but she just keeps living like nothing is wrong.
I envied her childlike faith...
She doesn't worry
She knows mom and dad will take care of her
She knows God is in control and He loves her
She is a amazing







Tuesday, February 8, 2011

Update


Friends & Family
We had our appt with the pediatric neurosurgeon at OHSU this afternoon to discuss the cyst and schedule the removal of it from her head. The good news is that the Neurosurgeon said IF it is just an arachnoid cyst then it is a fairly simple procedure to cut into her head, drain it, and put a shunt in so it doesn’t grow back. However there is a small possibility it could still be a tumor. The situation really has gone from bad to worse to be quite frank. Mikayla has been diagnosed with having “Horners Syndrome” it is a rare neurological disorder than can cause headaches, tumors & cysts in the brain and /or spine, and strokes. It is usually caused from damage to the carotid arteries is our understanding. The Neurosurgeon says we need to get this resolved quickly and before he can do anything else about the cyst.
The next step now is a massive MRI/MRA to her brain, spine, & neck. She has to be sedated so they need an anesthesiologist for about a 5 hour block of time. She also needs to see a Neuro Ophthalmologist on top of the neurosurgeon we are already seeing. The Neuro Ophthalmologist is the one who will deal with the horners syndrome and how to treat/fix it. We really can’t do anything until we get this MRI & MRA done and the soonest OHSU could do was March 18th which is obviously NOT quickly. We are really praying that St. Vincents can get her in sooner, but we won’t know until tomorrow.
As of right now Mikayla is doing fine and really has no idea what is going on, which is probably for the best. We are still trying to take this all in and praying for quick and smooth resolution to all of this. I know God has purposed all of this as part of His perfect plan but it is not easy and we are really kind of in shock.
Thank you so much everyone for your prayers and support. We are so grateful to be surrounded by so much love.